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ICU Nurse Co-Founds First Charitable Organization For Progressive Familial Intrahepatic Cholestasis, The Rare Disease That Affects Her Own Daughter
Louisville, Kentucky, ICU nurse Emily Ventura is mother to Cedar, a seven-year-old with a rare and life-threatening disease called progressive familial intrahepatic cholestasis (PFIC). When Cedar was diagnosed as an infant, Emily searched for information about PFIC and for a chance to connect with other parents, but there was little available. So, she along with two other moms she met online, Tara Kerns and Melanie Karakaidos, set out to create a supportive community by co-founding the charitable organization, PFIC Advocacy and Resource Network, LLC (PFIC Network).
As the only advocacy organization for families affected by PFIC in the U.S., the nonprofit has come a long way since its inception. In June, PFIC Network teamed up with Alagille Syndrome Alliance, another rare liver disease advocacy group, to arrange the first-ever PFIC Family Conference in Cincinnati, OH.
A total of 22 fami
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Pediatric Hematology / Oncology Nurse Taking On Life After Cancer
September 2019 marks two years since Courtney Alvis was hired as a pediatric hematology/oncology nurse at Children’s of Alabama, where in 2010 she was diagnosed with acute T-cell leukemia at age 16.
Alvis is now in remission, but she has endured the challenges that many of her patients experience today – from chemotherapy to weight fluctuation to lethargy to hair loss to neuropathy. And she knows the vital role nurses play in patients’ lives each day.
“They became my family and obviously led me to want to do the same for others,” Alvis said. “I was 16 and unable to go school, so my nurses became my friends, the people I hung out with.”
Alvis’s personal experience informs her work every day. She encourages her patients to “stay strong,” but she’s also aware that patients can tire of well-intended words of motivation at times. When that happens, she challenges patients to find happiness
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Adapting To Chaos: Emergency Nurses Practicing On The Front Lines
In the emergency department, every day brings a different crisis. Fortunately, health care professionals have the skills, training and resources necessary to deliver lifesaving care.
But what happens when the resources, even the basics of electricity or running water aren't available? How can emergency care be delivered on the front lines of a war-torn country or a city decimated by a hurricane? The realities, challenges and successes within the resource-constrained world of austere medicine will be showcased during Emergency Nursing 2019 – the Emergency Nurses Association's annual education conference – coming up Sept. 29-Oct. 2 in Austin, Texas.
Back by popular demand, Global Response Management members Alex Potter, BSN, RN, and former Army nurse Helen Perry, MSN, RN, ACNP-BC, CEN, will share their stories of delivering trauma care in Iraq during the battle for Mosul in 2016 and 2017
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FMCNA And ANNA Celebrate Nephrology Nurses Week, Recognizing The Role Nephrology Nurses Play In Patients' Lives
Fresenius Medical Care North America (FMCNA) — the nation's leading renal care company – and the American Nephrology Nurses Association (ANNA) – a professional nursing organization with more than 8,500 members celebrating its 50th year– continue their partnership this Nephrology Nurses Week to further the profession through a variety of initiatives including funding scholarships, producing recruiting videos, and providing grants for educational programs.
"Nephrology nurses have a critical impact on our patients every day," said Mike Asselta, president of Fresenius Kidney Care. "Through their expertise and passion, our nurses create meaningful bonds with our patients while delivering exceptional care. Our partnership with ANNA is important to supporting the professional development of our nurses and furthering the nephrology nursing field."
Through the collaborative partnership with ANN